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Down Syndrome On-Line offers a range of information resources and online services to the international Down syndrome community published by Down Syndrome Education International, a leading international charity dedicated to advancing the understanding of effective ways of help the development and education of people with Down syndrome. This site offers a comprehensive, reliable and up-to-date range of information, resources and services for families, practitioners and researchers caring for, supporting and investigating Down syndrome. For more information, visit their website.
Down Syndrome Pages, created by the parents of a son with Down Syndrome, is an online directory of resources and information for people with Down Syndrome, their families and professionals. The site features an easy to navigate resource directory, a news page, which collects news feeds from across the Internet about Down syndrome, a Frequently Asked Questions (FAQ) page, videos and articles.
National Association for Down Syndrome provides critical counseling and support for parents of newly diagnosed infants with Down syndrome as well as advocacy, and information and referral services. In addition, NADS sponsors conferences and educational programs for parents and professionals. Their website features a number of helpful resources, the latest news and legislative updated as well as an informative fact sheet on Down Syndrome. For more information, visit their website or call (800) 221-4602.
National Down Syndrome Congress is the national voice for state and local groups, individual members, persons with Down syndrome, and all other interested persons. It also serves as the clearinghouse on Down syndrome, offering information on the syndrome itself and all areas of concern related to persons with Down syndrome. They offer information via their Q&A web section and their toll-free hotline - (800) 232-6372.
National Down Syndrome Society is a non-profit organization dedicated to increasing the awareness and acceptance of people with Down syndrome. They focus on education, research and advocacy by distributing timely and informative materials, encouraging and supporting the activities of local parent support groups, sponsoring conferences and scientific symposia and undertaking major systems advocacy efforts. Their website features an Advocacy Center that empowers people with Down syndrome and their families to take action on the issues that affect their lives as well as current news and events. For more information, call (800) 221-4602.Back to Top
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Family Resources Associates Down Syndrome Support Group is a New Jersey non-profit agency located in Shrewsbury, NJ that offers services and a center for families with infants, children, adolescents and adults who are developmentally delayed or disabled. FRA's mission is to enhance the competency of the family and to strengthen the capabilities of each individual with a disability. FRA provides home-based early intervention for infants, therapeutic recreation programs and assistive technology services, along with family and sibling support groups. Their service area for home-based therapy is Monmouth County, NJ. Many of their assistive technology services are provided throughout the State of New Jersey. FRA offers services for any family with a child or family member with Down syndrome. These services include parent support, peer support, library, information, news, workshops and scholarships. To contact FRA call (732) 747-5310 or e-mail them at firstname.lastname@example.org.
Jersey Shore Down Syndrome Association is a support and advocacy group serving families in Ocean County and the Jersey Shore area. The association offers opportunities to build friendships, network with others, and locate resources, information and support.
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