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Community and Internet Resources


Community: Support Groups and Disability Specific Organizations

Amputation/Limb Differences

New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.

International
National
State Listings:   CA / FL / ME / NV / WI /    (Official USPS State Abbreviations)

International

Center for International Rehabilitation (CIR) is a worldwide humanitarian network of individuals and organizations that promotes the full potential of people with disabilities through education, innovation, and advocacy. Our objective is to serve as a platform to foster dialogue and partnerships amongst people with disabilities and those who care. The Center for International Rehabilitation is located at 1900 L Street NW, Suite 500, Washington, DC 20036, or Phone : 202-223-3559 or Fax:202-223-3581.

National

Active Amp is an on-line connection for amputees with an active lifestyle. Via their website they offer an amputee sports directory with many sports and activities including fishing, sled hockey, sailing, skateboarding and many more. The site also includes an entire guide on information on prosthetics and technology, geared toward allowing the amputee to understand the products that are available and to make informed decisions. Also included is a listing of toys and tools that aid in maintaining an active lifestlye, general resource listings and a special section for children amputees.

American Amputee Foundation, Inc. (AAF), based in Little Rock, Arkansas, is a national information clearinghouse and referral center, serving primarily amputees and their families. AAF researches and gathers information including studies, product information, services, self-help publications, and review articles written within the field. For more information, Phone: (501) 666-2523 (Voice) or Email: info@americanamputee.org .

Amputee Coalition of America (ACA) is a national, non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences. They have an informative website offering an information center on limb loss, helpful publications and resources, and a peer support area. To learn more about the coalition, visit their website, call (888) AMP-KNOW (267-5669), or e-mail NLLICinfo@amputee-coalition.org.

New Sign Amputee Empowerment Partners (AEP) e-community is a free resource for individuals to connect and discuss a variety of topics related to the life of amputees. AEP e-community provides many different resources, information, guidance, and perspective on issues related to limb loss and limb deficiencies for patients, families, care-givers, co-workers and friends. They have a forum where amputees may share their story, ask questions, or discuss issues related to amputees. Amputee Empowerment Partners; providing encouragement, support and help to those who need a little nudge getting over the hurdles.

Amputee Resource Foundation of America, Inc., based in Minnetonka, Minnesota, offers an informative website with numerous links to amputation-related resources, amputation facts and statistics, and more.

LadyAmp is a website created especially for the woman amputee. The site features a lot of great resources, a message board and an e-mail newsletter.

LimbDifferences.org is a comprehensive online resource for families and friends of children with limb differences offering both practical information and emotional support. This site offers a listing of resources as well as a discussion on which you can exchange experiences and ideas.

National Amputation Foundation provides legal counsel, vocational guidance and placement, social activities, liaison with outside groups, psychological aid, and training in the use of prosthetic devices. For more information on how this association can help you, call (516) 887-3600.

CHILDREN'S ELECTRONIC HAND ASSISTANCE PROJECT program is to help parents find answers to the questions and concerns you may have regarding pediatric upper limb prosthetics and your child's future with a congenital limb deficiency or acquired upper extremity amputation. The program includes the Family Support Network, which is a service designed to provide one-on-one exchanges of information between parents of children with limb differences.

Running For Hope is a non-profit organization for people from all backgrounds to go beyond their limits and have fun. Through fundraising through run events this organization provides prosthetics or artificial limbs for those in the third world who have lost limbs as a result of war or land mine accidents or some other misfortune and provides the physical, emotional, mental, social and spiritual assistance needed to regain dignity, respect and hope. It is a mission to bring hope and relief to the hopeless. They provide artificial limbs to people who cannot afford them and special equipment to improve rehabilitation centers and gymnasiums for handicaps. They also enable individuals with all types of disabilities, especially amputees, to participate in mainstream athletics. To find out more about their programs and run events contact Running for Hope 5414 W. Calumet Road, Milwaukee, Wisconsin 53223, call (414) 687-1571 or send e-mail to elie@runningforhope.com

United Amputee Services Association (UASA) is a non-profit organization dedicated to helping amputees across the nation live a fulfilling life with dignity and independence. The association was chosen by the Barr Foundation to implement and run the Barr/United Amputee Assistance Fund (BUAAF). A major thrust of BUAAF is providing financial assistance to amputees that have no other source of funding. For more information, write to them at P.O. Box 4277, Winter Park, FL 32793-4277, or call (407) 359-5500.

State Listings

California

Mutual Amputee Aid Foundation (MAAF) is a non-profit, 501(c)(3), service organization devoted to providing peer-level support and information to individuals who have undergone, or are about to undergo, amputation surgery in the Los Angeles area. MAAF's objective is to help alleviate the fears and anxieties associated with amputation surgery, to counsel new amputees and answer their questions, and to provide encouragement and useful information as the new amputee resumes an active and productive life. MAAF members meet each month, alternately in Culver City, Van Nuys, and Torrance. Meetings are on Saturdays and start at noon. Each meeting includes a roundtable discussion, a program by a guest speaker, and plenty of time for one-on-one conversation and networking. Call (877) 267-8828 for the latest meeting information.

Stumps 'R Us is a non-profit, California-based educational and recreational corporation dedicated to "bringing together amputees of any description and their loved ones to learn from each other, exchange information, explore ongoing state-of-the-art technology and share growth, humor and personal experiences." Their website features a guest book in which visitors can share their stories, a joke board, a newsletter and a number of links to other helpful resources. They also offer a number of recreational events throughout the year. For more information, visit their website.

Florida

GOLDen Children - Greater Orlando Limb Differences is a Central Florida social community and support group for families with children who have limb differences (congenital or amputee). The group is open to families who live in the Central Florida area (including Orange, Seminole, Volusia, Lake, Osceola, and Brevard Counties).

Maine

Helping Hands Foundation is a non-profit foundation of parents with children with upper limb differences and offer support to the children and his or her family in facing the challenges of upper limb differences. Located in Mdfield, Maine.

Nevada

Northern Nevada Amputee Support Group is a non-profit organization serving the Reno/Sparks Area and Northern Nevada. They offer monthly meetings to encourage the sharing of each individual's ideas, thoughts and feelings. They also offer a Prosthetic Assistance Fund, sports and recreation information, as well as several special events each year. Their website also features an informative quarterly newsletter. For more information, contact this group at 3985 Warren Way, Reno, Nevada 89509 or call (775) 828-0885.

Wisconsin

New Sign Amputee Support Group is located at the Zablocki VA Med. Center, 5000 West National Avenue, Milwaukee, Wisconsin 53295. To contact them, call (414) 384-2000.

New Sign Running For Hope is a non-profit organization for people from all backgrounds to go beyond their limits and have fun. Through fundraising through run events this organization provides prosthetics or artificial limbs for those in the third world who have lost limbs as a result of war or land mine accidents or some other misfortune and provides the physical, emotional, mental, social and spiritual assistance needed to regain dignity, respect and hope. It is a mission to bring hope and relief to the hopeless. They provide artificial limbs to people who cannot afford them and special equipment to improve rehabilitation centers and gymnasiums for handicaps. They also enable individuals with all types of disabilities, especially amputees, to participate in mainstream athletics. To find out more about their programs and run events contact Running for Hope 5414 W. Calumet Road, Milwaukee, Wisconsin 53223, call (414) 687-1571 or send e-mail to elie@runningforhope.com

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[Updated September 30, 2012]
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