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Community and Internet Resources

Community: On-line Disability Communities: Disability Specific:

Parkinson's Disease

New Horizons Un-Limited Community Forum and Topic Discussion Boards is our on-line disability community forum here at New Horizons Un-Limited. The link above will take you to our NHU Community Forum's Welcome Pages. Our NHU Community Forum enables you to post messages, use instant messaging, Share Your Knowledge, Tell Us What You Think, Review a Resource, post classifieds, and more. The following link will take you to our NHU Community Forum for people experiencing Parkinson Disease.
NHU is not affiliated with any of the following disability communities and is not liable for any actions resulting from the visit to the linked resources. New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.
Warning! The resources below link to other on-line community forums in which people with disabilities may participate. Please be aware of the safety issues concerning the use of such online communities. It is not wise to share personal information (i.e. last name, address, phone number, social security number, etc.) to strangers you meet in discussion boards, newsgroups, chat rooms, etc. Please use your best judgment while visiting these on-line communities. For more information on using Internet forums, see our NHU Guide to Internet Discussion and Message Boards or Forums.

National

New Sign P-I-E-N-O Parkinson is a very good source of information for people with Parkinson's Disease and their families. The list of current topics is lengthy, and there is also a database of drugs available, an Answer Center which offers updates on current issues like stem cell research, and a list serve that readers can subscribe to. Email messages can be read on the site or as individual messages via your email server. The current topics cover a huge range of issues dealing with every aspect of PD from diet to relationships, from political debates to humor.

New Sign PatientsLikeMe was founded in 2004 and is a privately funded company dedicated to enabling people to share information that can improve the lives of patients with life-changing diseases. "To make this happen, we've created a platform for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits." It first began with a group of patients with ALS, then quickly moved on to those with Parkinson's Disease. Recently added are groups for those with HIV and AIDS. This site is an excellent resource for patient, caregiver, doctor, researcher. Pages include Profile, where patients can keep track of their symptoms and treatments; Patients, an area to seek out other patients with similar symptoms; Forum, a message board; Treatments; Symptoms; Research. There are also pages for doctor visits, and for My Care Team. PatientsLikeMe can be reached by email: support@patientslikeme.com or by mail: PatientsLikeMe Inc., 222 Third Street, Suite 0234, Cambridge, MA 02142.

For more on the topic of Parkinson's Disease:
If you have questions or ideas, information and solutions that you would like to share with us, you may contact us by e-mail at: horizons@new-horizons.org or to use our NHU E-Mail Form or NHU Community Discussion Board, click on the links below.

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© Copyright 2008, 2009 New Horizons Un-Limited Inc.
[Created October 31, 2008, Updated September 30, 2009]]
NHU has no liability for content or goods on the Internet.