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Community and Internet Resources

Community: Support Groups and Disability Specific Organizations

Turner's Syndrome


New Sign Human Growth Foundation helps children and adults with disorders of growth and growth hormone. The website offers information on the physical features, diagnosis, and prognosis for Turner's Syndrome on the site listed. For more information, contact the Foundation at 997 Glen Cove Avenue, Suite 5, Glen Head, NY 11545 or call 1-800-451-6434 or 1-516-671-4055.

National Institutes of Health: National Institute of Child Health and Human Development: Turners Syndrome offers a wealth of information on Turners Syndrome More specifically the site describes characteristics and potential complications, explains possible courses of treatments and offers facts and statistics on the syndrome.

New Sign Turner's Syndrome Corner is a forum on Yahoo for those with Turner's Syndrome.

Turner Syndrome Society of the United States provides assistance, support, and education to girls and women with Turner syndrome, their families, physicians, and the interested public. They offer an informative website with ample opportunity to communicate with others affected by this condition. For more information, visit their website, call (800) 365-9944 or e-mail tssus@turnersyndrome.org.

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[Updated April 28, 2014]
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