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Community and Internet Resources

Community: Support Groups and Disability Specific Organizations

Developmental Disabilities

State Listings:   FL / IL / KY / NJ / NY / RI / TN / WI    (Official USPS State Abbreviations)


American Association on Intellectual and Developmental Disabilities, formerly AAMR, is a non-profit organization. They offer a Reading room on their website, bringing you free reference material on intelectual and developmental disabilities. You can browse by subject, or search the database using keyword, author, or title fields. For more information, visit their website.

National Association for the Dually Diagnosed (NADD) is a leading North American expert in providing professionals, educators, policy makers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities. They offer numerous resources and a discussion forum on their website.

National Association of Councils on Developmental Disabilities supports the councils across the United States in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of people with developmental disabilities and their families.

National Center on Birth Defects and Developmental Disabilities seeks to promote optimal fetal, infant, and child development, prevent birth defects and childhood developmental disabilities, and enhance the quality of life and prevent secondary conditions among children, adolescents, and adults who are living with a disability. They offer an informative website covering a wide range of developmental disabilities. For more information, call (770) 488-7150 or e-mail bddi@cdc.gov.

The ARC of the United States is the national organization of and for people with mental retardation and related developmental disabilities and their families. It is devoted to promoting and improving supports and services for people with mental retardation and their families. The association also fosters research and education regarding the prevention of mental retardation in infants and young children. For more information, visit their website or contact your local chapter.

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State Listings


Florida Developmental Disabilities Council encourages and advocates opportunities for persons with developmental disabilities and their families to enhance their quality of life within their communities. The council offers a range of services including adult day training, supported employment, early intervention, parent training, a range of therapies, counseling, respite, supported living, personal care assistance and much, much more. For more information, call (800) 580-7801.


Illinois Life Span is the statewide information and advocacy coordination system for people with developmental disabilities. They can assist families in locating necessary services while also assisting them in advocating for the rights of their family members with developmental disabilities. For more information, visit their website or call (800) 588-7002.

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Council on Developmental Disabilities, located in Louisville, Kentucky, serves children and adults with developmental disabilities. They offer various recreational programs, educational workshops and presentations, family advocacy and much more. For more information, call (502) 584-1239.

New Jersey

New Jersey Developmental Disabilities Council provides a platform for New Jersey agencies, together with consumers, parents and advocates, to develop a coordinated social policy. To this end, the Council commissions research on policy issues and funds model programs. The Council also funds projects to inform decision-makers, legislators and the general public about developmental disabilities.

New York

DD Info Link is an on-line information service for Western New York residents impacted by developmental disability. This on-line service offers resources on hundreds of issues and topics for residents of Allegany, Cattaraugus, Chautauqua, Erie, Genesee, Niagra, and Orleans Counties.

New Sign Jawonio advancing independence of people with disabilities is the premiere provider of lifespan services in the Hudson Valley of New York State for individuals with developmental disabilities, mental illness, and chronic medical conditions. The mission of Jawonio is to advance the independence, well-being and equality of people with disabilities or special needs. Services include Health Care Center, Community Living Services, Day Services, Behavorial Health Services, Employment/Vocational Services, Developmental Disabilities Services and Consumer Directed Personal Assistant Services. Jawonio has continued to expand its programs and now provides high quality services to more than 5,000 children and adults each year. For over 60 years, Jawonio has provided support and services for individuals with developmental disabilities and special needs throughout Rockland County, New York , Westchester County, New York and Bergen and Passaic Counties in Northern New Jersey. For a very comprehensive listing of their services visit Jawonio Contact Jawonio at the Main Campus / Administration, 260 N. Little Tor Road, New City, NY 10956, Telephone: 845.708.2000 or FAX: 845.634.7731.

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Rhode Island

Rhode Island Developmental Disabilities Council promotes community involvement for people who have developmental disabilities. This organization uses the ideas and problems of the developmentally disabled to change services and supports to better meet their needs.


Tennessee Council on Developmental Disabilities is a a State office that promotes public policies to increase and support the inclusion of individuals with developmental disabilities in their communities. They offer the Disability Information and Referral Office. This office publishes and periodically updates an exhaustive list of services in three volumes, provides a website with access to its database, and maintains a calendar of training events of interest to individuals with disabilities and their families. To contact the I & R office call toll free (800) 640-4636.

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New Sign Bell Therapy a subsidary of Phoenix Care Systems, Inc. cares for children, adults and families living with behavioral, developmental and social challenges through program models designed to achieve maximum potential. Residential Services offers a variety of residential services for men and women. Each facility provide a home-like environment to enhance individual skills neeeded to achieve greater indepencence Licensed Community Based Residential Facilities - Serious & Persistent Mental Illness Licensed Community Based Residential Facilities - Intellectual and Developmental Disabilities Licensed Adult Family Homes - Intellectual and Developmental Disabilities Belwood Respite Home is an alternative to psychiatric inpatient hospitalization that expans the continuum of services, intervention and support of individuals in crisis to stabilize and quickly return them to their normal rhythm of daily activities. Licensed Crisis Respite - Serious & Persistent Mental Illness Licensed Crisis Respite - Developmentally Disabled Day Treatment & Vocational Services Medical Day Treatment - Serious & Persistent Mental Illness Work & Day Services - Intellectual and Developmental Disabilities Community Services Licensed Community Support Programs - Mental Illness Horizons Program (Daily Living Skills and Supported Independent Living) - Intellectual and Developmental Disabilities Outpatient Clinics Transportation Services Medical Transport Consultation & Training Services Bell Therapy, Inc. 5151 West Silver Spring Drive Milwaukee, WI 53218 Phone: (414) 527-6940 Fax: (414) 527-6971

New Sign Developmental Disabilities Information Service, INC. is a private non-profit agency serving adults and children in the Southeast Region of Wisconsin who are diagnosed with developmental delays encompassing severe emotional or physical disabilities that create substantial limitations in pursuing daily activities. DDIS provides the services listed below through contracts with Luxvida LLC, Racine County Human Services Department, Community Care Organization, Inc. and private pay agreements. For more information, contact the Developmental Disabilities Information Service, INC., 1220 Mound Ave Suite 312, Racine, WI 53404, Phone (262) 637-2707, Fax (262) 637-0266 and info@ddisracine.org

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