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Books and Media: Health and Care

Avoiding Attendants from Hell: A Practical Guide to Finding, Hiring and Keeping Personal Care Attendants
Written by June Price
{Published by June Price, 1998, ISBN 1-888725-18-4 (spiralbound), ISBN 1-888725-19-2 (paperback)}

This book provides a comprehensive guide for finding, hiring and keeping Personal Care Attendants. For more information contact: Avoiding Attendants from Hell.

Disability and Health Journal

This quarterly e-mail newsletter published by the American Association on Health and Disability (AAHD). The mission of AAHD is to advance health and wellness initiatives for people with disabilities, as well as to identify effective intervention strategies to reduce the incidence of secondary conditions and health disparities between people with disabilities and the general population. AAHD accomplishes its mission through research, education and advocacy.

Physicians' Guide to Rare Diseases

Physicians' Guide to Rare Diseases, Second Edition, edited by Jess G. Thoene, M.D., is a publication of the National Organization for Rare Disorders (NORD). The guide is a comprehensive reference manual that covers almost 900 disease descriptions and aids in identifying rare disorders and finding treatments and support groups. It is $78.00 for one copy and reduced prices for additional copies. $8.95 for shipping and handling, but this fee is waived if you prepay. For more information on the guide, contact NORD or visit their website. If you would like to order the guide, mail your payment to Physicians' Guide to Rare Diseases, Dowden Publishing Company, 110 Summit Ave., Montevale, New Jersey 07645 or telephone and fax orders are welcome (Tel: 800-707-7040; Fax: 201-391-2778).

Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill
By Cappy Capossela, Sheila Warnock (Contributor), and Sukie Miller

This book was written to assist friends and family of those with disabilities or chronic illness in forming a supportive team to assist with the daily care of their loved one in need. Share the Care is a model of care using a unique group system designed to meet all of the patient’s needs without over-burdening any one person. This book walks you through the process of starting and sustaining such a group. You can order this book online at Share the Care

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[Updated January 31, 2019]
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