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Disability Experiences

Disability Specific: Vestibular Disorders

Includes Dizziness, Inner Ear Disorders and Meniere's Syndrome.
New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.

Disability Experiences provides a place for you to express information about yourself, your experiences, stories, poetry, art, music, dance, advice or other creative writing. This collection of writings and websites have been submitted by our community or link to websites that share the personal disability experiences of people with disabilities. This section offers individuals a chance to experience other's ideas and thoughts. Also, if you wish to submit your own writing or website, please click on our e-mail or e-mail form below.

Dizziness and Me is an article written by Phil from Washington and submitted to New Horizons Un-Limited in which he has shared his personal, 33 year experience with a vestibular disorder, an inner ear disorder that causes severe dizziness and nausea. Phil's experience with misdiagnoses and dizziness are unfortunately common with inner ear diseases. Through Phil's experience, we can all begin to understand the complications brought to daily living with vestibular disorders. Thank you to Phil for sharing his experiences and these helpful suggestions on what people with vestibular disorders need from their health professionals and rehabilitation.

International

United Kingdom

New Sign Labyrinthitis.org.uk is a website developed by two ladies in the United Kingdom who suffer from what they call "uncompensated labyrinthitis". They have developed this website to provide information and support for other people who are experiencing ongoing vestibular disorders. As they say on their home page, the site is written by patients for patients. It is a very good website to help people suffering from inner ear dizziness to learn that they are not alone in their suffering, in being misunderstood by their family and friends, and in having difficulty finding a physician that can tell them what is really wrong. This website includes information about how the inner ear and balance systems work, a list of some of the symptoms a person might experience, the process of getting a diagnosis and some of the tests that might be used, information about VRT (vestibular rehabilitation therapy), and a very good section on coping with the disease and the misunderstanding of family and friends. This website includes stories of their experiences with dizziness written by the two women who developed this website. The stories show that finding help and making progress overcoming inner ear disorders is slow but there is hope. The website also has links to websites with information about vestibular disorders and support groups and a list of three books about living with vestibular disorders. For more information, send e-mail to iliaandemma@hotmail.com

For more on the topic of Vestibular Disorders:
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[Updated April 30, 2007]
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