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What is it like for disabled individuals and their families to live in a world which moves at a different pace,
a world that has different abilities and different options?
What is it like to try to balance all these differences without any additional time beyond the same 24-hour day,
seven days a week, allotted to all?
A disabled child has extraordinary needs which require a great deal of time. More time is needed for many everyday things,
for example: to dress, to eat, or to clean up.
Hurrying is not an option.
Hurrying can cause an increase in difficulty, increasing frustration, and making tasks even more difficult.
Frequently, one finds there is insufficient time to meet the basic needs of the family: appointments, home maintenance, shopping, haircuts, etc.
Arranging for and waiting for special van transportation can often, only make things worse.
It's often not possible to do it alone!
Help would make a big difference!
One family has found it pays to be gentle with themselves,
to not have super human expectations,
to know, at the end of each day, they have done their best,
aware their best is often, not good enough, but it is all there is,
and tomorrow, they can "begin again."
--------------------------A Conversation with a Mother of Adult Children with Disabilities, (copyright 1997, June 30, 2006)
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[Updated June 30, 2006]
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