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Community and Internet Resources


Community: Support Groups and Disability Specific Organizations

Fragile X Syndrome

National

National Fragile X Foundation offers educational and emotional support to families affected by Fragile X, promotes public and professional awareness, and advances research toward improved treatments and a cure for fragile X syndrome. They offer a very informative website including information on characteristics and causes of the disease, testing, medical treatments, and more. They also offer many helpful publications and resources. For more information on this condition or to learn more about the foundation, visit their website, call (800) 688-8765 or e-mail NATLFX@FragileX.org.

State Listings

California

New Sign Fragile X Association of Southern California was formed to promote public awareness of Fragile X syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X syndrome. For more information, call (818) 754-4227 or e-mail info@fraxsocal.org.

Florida

New Sign Conquer Fragile X, is an organization based in Palm Beach, Florida. They offer a support group for families. They also offer a very informative and personal website. For more information, call (561) 842-9219.

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Community and Internet Resources / Editorials / FAQ / Library and Research: News Publications and Media

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[Updated February 27, 2004]
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