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Community and Internet Resources


Community: Caregiver Support Groups



National

Caregiver.com is the online aspect of Today's Caregiver Magazine. This website offers a chat area, a listing of helpful organizations, a listing of events and more. You may also sign up to receive a free e-mail newsletter. Visit this website to learn more.

New Sign Disaboom was founded by Dr. J. Glen House, a physician specializing in physical medicine and rehabilitation who is also a quapriplegic. Their mission is to create the first comprehensive source of information, insight and personal engagement for a disability community. There is a whole section devoted to caregivers and caregiver support. For more information, contact them at Disaboom, Inc., 7730 E. Belleview Ave., Suite A306, Denver, CO 80111 or Phone: (720) 407-6530 or Fax: (720) 407-6531 or send e-mail to Info@disaboom.com

Empowering Caregivers is a website designed to offer a support system to all caregivers. The website features a chatroom, a message board, links to resources, articles, newsletters and other suggested readings, and also offers a number of suggested coping strategies.

Family Caregiver Alliance, is the premier support organization for caregivers. They offer an informative website on which you will find specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS and other disorders and long-term care concerns. Their site offers an e-mail support group, encouraging caregivers to exchange ideas and solutions to common difficulties. For more information, visit their website or e-mail info@caregiver.org,.

New Sign National Respite Locator Service helps parents, caregivers and professionals find respite services in their state and local areas to match their specific needs. There is a "Search for Respite" feature with this service to help find what you need whether it is for the elderly or adult day care services or for therapy/respite camps for kids with autism or other special needs or disabilities. Respite is for caregivers to get a break from taking care of kids or the elderly or otherwise with disabilities or chronic or terminal illnesses. Respite can occur out of home and in home settings for a length of time depending on the needs of the family and the availability of the resources. The service headquarters are located in Chapel Hill, North Carolina. You can find out about respite care available in your own state. For more information, the address is Chapel Hill Training Outreach Project, Inc., 800 Eastmore Dr. Suite 105, Chapel Hill, NC 27514, Telephone number: (919) 490-5577, Fax number: (919) 490-4905 and TDD number (919) 490-5577.

Traumatic Brain Injury (TBI) Help Desk for Caregivers is offered by the Jamaica Hospital Medical Center located in Jamaica, New York. The website offers caregivers of people with traumatic brain injury a supportive and informative online community. The site features chat rooms, excerpts from books and journals relating to TBI, information relating to coping strategies, frequently asked questions, a glossary of terms, as well as an extensive listing of local and national TBI support groups.

Brady Institute for Traumatic Brain Injury at Jamaica Hospital Medical Center offers an on-line, professionally moderated Acquired Brain Injury (ABI) Caregiver Support Group, of which the focus will be to teach "state-of-the-art problem solving skills to help [caregivers] manage the difficulties of caring for a brain injury survivor." This support group is free to attend. You need only have access to the Internet during the designated group time. If you are interested in joining the group, please send your e-mail address to Dr. Robert Katz, either by phone at (718) 206-7824 or by e-mail to bobcatzy@aol.com.

Well Spouse Association (WSA), an international, non-profit membership organization, provides emotional support to wives, husbands and partners of the chronically ill and/or disabled. WSA offers support groups, round robin and mentor programs, on-line forum, respite weekends, national conference and a quarterly newsletter. Assistance given to start new support groups. For more information, visit their website at www.wellspouse.org or email us at info@wellspouse.org or call 1-800-838-0879.


State Listings

North Carolina

Full Circle of Care is an informative website for caregivers. While their focus is on caregivers of the elderly, much of the information provided relates to those caring for younger family members with disabilities as well. The site offers a listing of caregiver support groups by county, links to helpful caregiver handbooks and newsletters, information on caregiver stress and burnout and much more.


Ohio

Caregiver Assistance Network offers caregivers an opportunity to share their experiences while also providing support to one another. All caregivers, regardless of background, are welcome to attend group meetings. Their website features several helpful links and Balance - a newsletter dedicated to the support of caregivers. To find a support group in your area, call (513) 929-GIVE (4483).


Oregon

Caregiver Coalition of Oregon offers practical information, resources and tips that can make a positive difference in the ways you provide care, including personal stories, resource listings and much more. They also provide caregiver training. For more information, visit their website.


Wisconsin

Care for the Caregivers Support Group meets at West Allis Memorial Hospital and Manor Park Village providing supportive help for caregivers. This support group is open to the public. For days and times of meetings, call (414) 328-7405.

New Sign "Living Options in Southeastern Wisconsin" is designed to assist people, caregivers and professionals who are seeking appropriate living situations. Nursing Homes and Health Care Centers that are skilled nursing facilities designed for the needs of people that are convalescing from sickness and or surgery or long term care and many other types of living programs and facilitiies enter their program and facility information on this website. Program and facility contributors are responsible for the accuracy of their information. Hospice care programs that help people that are terminally ill that only have 6 months or less to live and their families and assisted living facilities for private living in Residential Care Apartment complexes of at least 250 square feet with an access of at no more than 28 hours per week of supportive personal and nursing services are also listed. There are fees involved with this program. This site is managed by Family Caregiver Support Network of Interfaith Older Adult Programs, Inc. For more information, contact the Interfaith Older Adult programs for a list or call (414) 220-8600.

Shepherd's Bridge, Inc. offers a number of helpful seminars and workshops for caregivers of individuals with disabilities and the elderly. They also offer on-site consulting in regards to home care. Their website features several helpful resources as well as a listing of news items relating to caregiver support. For more information, call (262) 787-0025.


For more on the topic of Community:

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[Updated May 31, 2008]
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