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Community and Internet Resources


Community: Support Groups and Disability Specific Organizations

Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease)

National

ALS Association (Lou Gehrig's Disease) provides up-to-date information and education materials to the ALS community, including patients and families, caregivers, researchers and members in the health care fields. Their website offers information on ALS symptoms, forms, diagnosis and treatment. They also offer a comprehensive manual on ALS for patients and their families. Visit their website to learn more about this disease.

ALS Survival Guide is an independent website that offers a lot of good information for those with ALS. The site offers information for those recently diagnosed, including fact sheets and tips on how to cope with ALS. The site also features information on causes of ALS, ALS treatments, ALS statistics, ALS related legal and financial issues, adaptive equipment, and much more. They also feature an "Ask the Expert" area.

New Sign Project ALS is a not-for-profit organization dedicated to finding a cure and effective treatments for people living with A.L.S. Their website features the latest in reasearch news. Visit their website for more information.

New Sign Ride For Life is a New York-based, non-profit corporation founded in 1998 by ALS patients, caregivers and those who care about people living with ALS. Their website features news and resource links as well as Lenny's Place, a web community where ALS patients, caregivers, family, and friends, can meet and exchange tips, ideas, ask questions, and make comments about living with ALS. They also offer several competitive grants to people living with ALS. For more information, visit their website.

New Sign World Federation of Neurology Amyotrophic Lateral Sclerosis works to link researchers and clinicians worldwide with the goal of finding effective treatment and a cure for ALS. Their website offers information on clinical trials as well as a list of clinics and centers specializing in ALS.

State Listings

Illinois

Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd. is a non-profit organization devoted to the treatment and elimination of amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig's disease. The Foundation supports the ALS community in Chicago and its suburbs with Support Groups, Private Counseling, Equipment Loans and Educational Activities. For more information, call (888) ALS-1107 or e-mail info@lesturnerals.org

Florida

ALS Recovery Foundation's Patient Care Fund seeks to aid families impacted by ALS by providing financial assistance to those in need of equipment and/or supplies. The Patient Care Fund is available to all residents of Dade, Broward, Monroe and Palm Beach County in Florida. The application can be downloaded from the foundation's website. For more information, call (305) 243-7400 or (800) 690-2571.

University of Miami, ALS Clinical and Research Center provides the highest level of care and multidimensional support for patients with Amyotrophic Lateral Sclerosis (ALS) and supports the families from the time of diagnosis to the end stages of the disease, while conducting advanced research into the cause and cure of ALS. Their website offers general ALS facts, information on support groups, a listing of ALS Clinical Care Centers, and more.

For more on the topic of Community:

Community and Internet Resources / Editorials / FAQ / Library and Research: News Publications and Media

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[Updated July 29, 2005]
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