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Community and Internet Resources


Community: Support Groups and Disability Specific Organizations

Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease)


New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.

National
State Listings:   IL / FL    (Official USPS State Abbreviations)


National

ALS Association (Lou Gehrig's Disease) provides up-to-date information and education materials to the ALS community, including patients and families, caregivers, researchers and members in the health care fields. Their website offers information on ALS symptoms, forms, diagnosis and treatment. They also offer a comprehensive manual on ALS for patients and their families. Visit their website to learn more about this disease.

ALS Worldwide is dedicated to the support of ALS patients and families by providing information on the newest treatments for symptom relief as well as a connection to clinical trials. Via their 2013 publication, A Paradigm Shift in ALS/MND Clinic Care: Best Practices From the Patient Perspective, ALS worldwide presents research material and brings together the best ideas concerning the care of individuals with ALS.

Project ALS is a not-for-profit organization dedicated to finding a cure and effective treatments for people living with A.L.S. Their website features the latest in reasearch news. Visit their website for more information.

World Federation of Neurology Amyotrophic Lateral Sclerosis works to link researchers and clinicians worldwide with the goal of finding effective treatment and a cure for ALS. Their website offers information on clinical trials as well as a list of clinics and centers specializing in ALS.


State Listings


Illinois

Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd. is a non-profit organization devoted to the treatment and elimination of amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig's disease. The Foundation supports the ALS community in Chicago and its suburbs with Support Groups, Private Counseling, Equipment Loans and Educational Activities. For more information, call (888) ALS-1107 or e-mail info@lesturnerals.org


Florida

University of Miami, ALS Clinical and Research Center provides the highest level of care and multidimensional support for patients with Amyotrophic Lateral Sclerosis (ALS) and supports the families from the time of diagnosis to the end stages of the disease, while conducting advanced research into the cause and cure of ALS. Their website offers general ALS facts, information on support groups, a listing of ALS Clinical Care Centers, and more.


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[Updated December 31, 2015]
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