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Community and Internet Resources


Health and Care: Disability Specific Resources: Parkinson Disease


New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgement and make your own decisions when using the information. Before making any change, consult your health care professional.

National
State Listings:   FL    (Official USPS State Abbreviations)
Country Listings:   Australia


National

New Sign APDA National Rehabilitation Resource Center Boston University College of Health & Rehabilitation is the first national Rehabilitation Resource Center offers callers the opportunity to speak with a licensed physical therapist who can answer questions about exercise, provide information about PD-specific programs or providers in your area, and provide educational materials. This resource may also be utilized by healthcare professionals to address specific questions about managing Parkinson's disease symptoms through exercise and rehabilitation interventions. Call (888) 606-1688.

New Sign Lee Silverman Voice Treatment (LSVT) LSVT Global, Inc. is committed to maintaining the highest standard of clinical excellence for all patients receiving LSVT therapies - LSVT LOUD (speech therapy) or LSVT BIG (physical/occupational therapy). All LSVT Certified Clinicians listed in their database are professional speech-language clinicians (LSVT LOUD), or physical or occupational therapists (LSVT BIG). To locate a clinician in your area visit the “Find a Clinician” page. For more information, visit their website or contact them at 6890 E. Sunrise Drive, Suite 120 241, Tucson, AZ 85750 or call (888) 438-5788.

New Sign Hope Parkinson Program: Managing Parkinson's Disease offers Tips and Tricks for Managing Parkinson's Disease, Complimentary and Alternative Therapies in Parkinson’s Disease, and an Update on Present and Future Therapies.

Parkinson's Health.com is a very educational, easy-to-navigate site for patients and caregivers. The home page offers links to "I think I have PD", "Diagnosed with PD", "Caregivers". There is also a link to PD news, and a free newsletter to sign up for. There are tools and tips for living with PD, and advocacy groups too. For more information, send e-mail to info@teva.net

The Parkinson's Institute is a non-profit organization that uniquely combines a comprehensive Movement Disorders Patient Clinic, a full basic research laboratory, a cadre of world-renowned clinical researchers and epidemiologists, as well as specialized services, education and outreach programs...all under one roof. This is an excellent educational website. The links to basic and clinical research offer lots of information about the necessary research into the causes and cure for Parkinson's. Under the Patients & Caregivers link, the Outreach Program lists many services provided by the Institute, including free educational materials, referral to support groups, training seminars for healthcare professionals, an annual symposium, and tours of the Institute. The Parkinson's Institute can be reached by phone at 408.734.2800 (northern California) or toll-free at 1.800.655.2273. The Institute is located at 1170 Morse Avenue, Sunnyvale, California 94089-1605.

PatientsLikeMe was founded in 2004 and is a privately funded company dedicated to enabling people to share information that can improve the lives of patients with life-changing diseases. "To make this happen, we've created a platform for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits." It first began with a group of patients with ALS, then quickly moved on to those with Parkinson's Disease. Recently added are groups for those with HIV and AIDS. This site is an excellent resource for patient, caregiver, doctor, researcher. Pages include Profile, where patients can keep track of their symptoms and treatments; Patients, an area to seek out other patients with similar symptoms; Forum, a message board; Treatments; Symptoms; and Research. There are also pages for doctor visits, and for My Care Team. PatientsLikeMe can be reached by email: support@patientslikeme.com or by mail: PatientsLikeMe Inc., 222 Third Street, Suite 0234, Cambridge, MA 02142.

PDRing is an excellent source of information about Parkinson's Disease (PD). There are many, many articles on this site that cover nearly everything a patient or caregiver needs to know about PD. They range from alternative medicine to mental disturbances, and from physical therapy to surgery. There are topics related primarily to the caregiver, and articles on speech therapy and parenthood issues.

New Sign The VitalStim® Therapy System is a safe and effective treatment for patients suffering with difficulty swallowing or dysphagia. Often times, insurance and Medicare will cover all or part of the cost for the treatment of swallowing dysfunction provided the treatment is medically necessary and delivered by a qualified professional. Visit their website to learn more about the treatment or find a qualified professional near you or call (800) 506-1130.

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State Listings


Florida

New Sign Hope Parkinson Program is a community resource dedicated to improving quality of life for patients living with Parkinson’s disease. They offer a full calendar of events and opportunities for patients and family members, including Support groups, Exercise and movement classes, Creative arts classes, Educational seminars and conferences, and Socialization and networking opportunities. Located at 12711 Westlinks Drive, Suite 9, Fort Myers, FL 33913, contact them at (800) 859-0314.

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Country Listings


Australia

myDr.com is an Australian site that has 29 articles related to Parkinson's Disease to find information and treatment options available. Covered information includes: mobility, depression, speech and swallowing, oral health care. The article on young onset Parkinson's is exceptionally good.

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[Updated December 31, 2014]
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