New Horizons Un-Limited Inc. New Horizons Un-Limited Inc.Parkinson's Health.com is a very educational, easy-to-navigate site for patients and caregivers. The home page offers links to "I think I have PD", "Diagnosed with PD", "Caregivers". There is also a link to PD news, and a free newsletter to sign up for. There are tools and tips for living with PD, and advocacy groups too. For more information, send e-mail to info@teva.net
Parkinson's Hope is a site presented by Glaxo Smith Kline. There are sections explaining what Parkinson's Disease is, treatment options, healthy eating and exercise. There is a checklist to help patients prepare for their next doctor visit. There are also tips for caregivers and a free newsletter available. One of the unique features of this website is the interactive tool of "The Parkinson's Friendly Home." This tool allows viewers to click on different rooms of a home to see various features designed with the patient's safety in mind. Another helpful feature of the website is that the sections are available as audio versions or as downloadable podcasts.
The Parkinson's Institute is a non-profit organization that uniquely combines a comprehensive Movement Disorders Patient Clinic, a full basic research laboratory, a cadre of world-renowned clinical researchers and epidemiologists, as well as specialized services, education and outreach programs...all under one roof. This is an excellent educational website. The links to basic and clinical research offer lots of information about the necessary research into the causes and cure for Parkinson's. Under the Patients & Caregivers link, the Outreach Program lists many services provided by the Institute, including free educational materials, referral to support groups, training seminars for healthcare professionals, an annual symposium, and tours of the Institute. The Parkinson's Institute can be reached by phone at 408.734.2800 (northern California) or toll-free at 1.800.655.2273. The Institute is located at 1170 Morse Avenue, Sunnyvale, California 94089-1605.
PatientsLikeMe was founded in 2004 and is a privately funded company dedicated to enabling people to share information that can improve the lives of patients with life-changing diseases. "To make this happen, we've created a platform for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits." It first began with a group of patients with ALS, then quickly moved on to those with Parkinson's Disease. Recently added are groups for those with HIV and AIDS. This site is an excellent resource for patient, caregiver, doctor, researcher. Pages include Profile, where patients can keep track of their symptoms and treatments; Patients, an area to seek out other patients with similar symptoms; Forum, a message board; Treatments; Symptoms; and Research. There are also pages for doctor visits, and for My Care Team. PatientsLikeMe can be reached by email: support@patientslikeme.com or by mail: PatientsLikeMe Inc., 222 Third Street, Suite 0234, Cambridge, MA 02142.
PDRing is an excellent source of information about Parkinson's Disease (PD). There are many, many articles on this site that cover nearly everything a patient or caregiver needs to know about PD. They range from alternative medicine to mental disturbances, and from physical therapy to surgery. There are topics related primarily to the caregiver, and articles on speech therapy and parenthood issues.
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