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Library and Research

Books: Health and Care

Avoiding Attendants from Hell: A Practical Guide to Finding, Hiring and Keeping Personal Care Attendants
Written by June Price
{Published by June Price, 1998, ISBN 1-888725-18-4 (spiralbound), ISBN 1-888725-19-2 (paperback)}

This book provides a comprehensive guide for finding, hiring and keeping Personal Care Attendants. For more information contact: Avoiding Attendants from Hell.

Physicians' Guide to Rare Diseases

Physicians' Guide to Rare Diseases, Second Edition, edited by Jess G. Thoene, M.D., is a publication of the National Organization for Rare Disorders (NORD). The guide is a comprehensive reference manual that covers almost 900 disease descriptions and aids in identifying rare disorders and finding treatments and support groups. It is $78.00 for one copy and reduced prices for additional copies. $8.95 for shipping and handling, but this fee is waived if you prepay. For more information on the guide, contact NORD or visit their website. If you would like to order the guide, mail your payment to Physicians' Guide to Rare Diseases, Dowden Publishing Company, 110 Summit Ave., Montevale, New Jersey 07645 or telephone and fax orders are welcome (Tel: 800-707-7040; Fax: 201-391-2778).

Planning Care at Home, A Guide for Advocates and Families (2000)

For frail, elderly individuals and people with disabilities, avoiding institutionalization is critical. This guide provides the road map through eligibility, coverage and appeals for the programs that help people stay in the community. Armed with this guide, elderly and disabled individuals and their advocates and family members can navigate the current system of home care services and create the service package suited to their individual needs. (135+ pages) Order this manual through the National Senior Citizens Law Center. NSCLC's manuals cover practice issues and are especially designed for the attorney/advocate, with complete and practical information about important current legal issues. Manuals are $25 each ($10 for non-profit organizations). To order, send check payable to: National Senior Citizens Law Center, 1101 14th Street, NW Suite 400, Washington, DC 20005.

Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill
By Cappy Capossela, Sheila Warnock (Contributor), and Sukie Miller

This book was written to assist friends and family of those with disabilities or chronic illness in forming a supportive team to assist with the daily care of their loved one in need. Share the Care is a model of care using a unique group system designed to meet all of the patient’s needs without over-burdening any one person. This book walks you through the process of starting and sustaining such a group. You can order this book online at Amazon.com

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[Updated August 31, 2009]
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